EventsFor Support Group Meetings and Special Support Group Presentations, please see the Support Groups page.
News and upcoming events
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TSA-RMR Golf Outing on June 9th.Golfers of all abilities are invited to join in the fun. The event starts at 10 am at the Glenmoor Country Club located at 110 Glenmoor Drive in Cherry Hills Village. Kids (and parents if there are enough openings) will be able to get golf tips to help improve their game. Please bring golf clubs if you have them as there will only be a limited number of clubs available for use. Lunch for all will be served around 11:30 am. This is a free event for Denver area members so please come join in the fun. RSVP to KLCBlue79@aol.com or tsarmr@att.net. Please remember that no jeans are allowed and individuals should wear a collared shirt. We hope to see many of you at this great event! |
ABC to spread awareness about TS
and you can be involved!
National TSA is collaborating with ABC and esteemed news reporter Diane Sawyer on a primetime television documentary about children with Tourette Syndrome.
The program is currently in the research and development stages, and TSA is cooperating with ABC on its research.
We are helping ABC locate possible young candidates for referral to the producers for initial telephone interviews. These interviews may or may not lead to face-to-face meetings. In the meantime, we are looking for families with children between the ages of 5 -16. Please note that although it is our goal to identify possible candidates and to provide informational resources to the producers, ABC -- and ABC alone -- will have the final decisions about which children might be included in the program.
Generally, we are seeking youngsters who are comfortable talking about their TS symptoms and are fairly articulate. Children who have found ways to benefit from a variety of coping mechanisms such as participation in sports, playing musical instruments, the arts or other games/hobbies are of particular interest.
The overall objective of this documentary is to educate, raise awareness and increase social acceptance by the peers of all children (and adults) with TS.
Interested families should contact me at tracy.flynn@tsa-usa.org. Please be sure to include information about the child and briefly describe his or her TS symptoms. Also be sure to include the child's name, a mailing address and phone number where a parent or guardian can be reached by ABC producers if they would like additional information.
We are looking forward to generating a lot of positive awareness via this documentary and greatly appreciate your assistance.
Tracy Colletti-Flynn
Manager, Public Relations and Communications
Tourette Syndrome Association, Inc.
(718) 224-2999, ext. 236
(fax) 718-279-9596
website: http://tsa-usa.org
COLORADO MEMBERS SUPPORT MEETINGS
Colorado Members Denver Area –
Advocacy:
Northglenn, Colorado, High School Presentation
Members of the Rocky Mountain Region TSA in Denver gave an informational presentation to a senior high school science class at Northglenn High School May 15, 2007 to acquaint the students with the TSA organization, the cause and symptoms of TS and current treatments. Ten minutes of the video “I have Tourettes but Tourettes doesn’t have me” was shown at the end and the students asked good questions as follow-up. Members of the RMR-TSA are available to present to schools, businesses or groups that are interested.
Government Awareness Week –May 28-June 1.
This year, the TSA will be observing the week of May 28 through June 1, 2007 as our national “Government Relations Awareness Week”. This will be our Fifth Annual Government Relations Awareness Program and this year we have chosen to observe the entire week instead of just a single day out of TSA’s Awareness Month so that each and every member can fully participate locally. The “Government Relations Awareness Week” is a program to help the chapters continue their local government relations campaign–with local, state, and federal elected officials–by meeting with them in their local offices. The national TSA has support material available to help you with visits to your local government representatives.
If you would like to plan a visit you can visit the TSA website www.tsa.org/ and click public policy, TSA Legislative Action Center. Sally Allen, TSA-RMR board president, can be reached by email Sallymmallen@aol.com for letters requesting appointments, confirming appointments and thanking representatives after the visit.
Training and Advocacy in Washington DC for Chapter Chairs
The new Chapter Chairperson for TSA Rocky Mountain Region, Sally Mescher Allen, and the legislative chair, Mollie Collum, attended the Training and Advocacy weekend in Washington DC in April. Sally and Mollie were able to meet with several aides or members of Congress to advocate for their support for several bills before the Congress. Of interest to TSA is the mental health parity legislation, reauthorization of IDEA, continued funding of the Tourette Syndrome Program at the CDC (two million dollars for the CDC to continue to educate parents, educators and health providers and to expand the scientific knowledge base), and the Genetic Information Nondiscrimination Act of 2007.
Also during the weekend, training included workshops on Functional Behavioral Assessment and Positive Behavior intervention Plan with Susan Conners, TSA Education Specialist; the New IDEA and how it affects students with TS with Kathy Giordano, TSA Advocacy Specialist, Public Relations; Grant Writing; Speakers Bureau; and Special Events. It was a very informative, well organized weekend with many ideas being shared between the different state’s chapter chairpersons.
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